Our beautiful Lani
Thanks for visiting us here at Team LANI!
Please help us raise awareness for Epilepsy and some funds for the Epilepsy Foundation.
Why Team Lani?
Our Epilepsy warrior is Alannah - the most beautiful, loving girl you will ever meet. Her smile and presence is a tonic and will light up any room. Lani also has GAND - Gatad2b associated neurodevelopmental disorder - 1 of just over 400 individuals worldwide. Of this number, 25% have epilepsy and unfortunately Lani faces the severe end of that epilepsy spectrum.
It’s not just the big seizures that make her days difficult, it’s the abnormal background brainwaves that simmer away when medication isn’t enough to do anything more than take the edge off. It’s the side effects of the 6 antiepileptic medications that she takes twice a day in an attempt to gain some control despite it’s refractory nature being incredibly difficult to control and the resulting difficulties she faces in her life with the damage epilepsy does to her brain. Lani’s epilepsy is severe and catergorised as Lennox Gastaut (LGS) and results in Developmental Epileptic Encephalopathy (DEE). Her future is uncertain however we will never give up trying to make her days that little bit easier and bring joy for her wherever we can.
The Epilepsy Foundation have been an amazing support and guidance for us in the past few years and helped us to source the best care for our girl.
Please help us in our efforts to raise money and make a difference by taking part in Walk for Epilepsy.
Please help us by giving whatever you can using the 'Donate' button. The more people that know about the walk, the greater the impact, so please also spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot to us all xoxox
Our Achievements
Logged first KM
50% Distance Target
100% Distance Target
Thank you to our Sponsors
$125
Pieres
$106
Crain Family X
Go Team Lani!
$106
Doug Omand
With best wishes for Team Lani!
$106
Opa
❤️❤️❤️
$106
Alan Crouch
Enjoy the walk Keef!
$106
Tianie
Incredible effort for an incredible young lady ❤️❤️❤️
$106
Carolyn Fabbro
Best wishes for your walk and fundraising, Alannah and Chris
$106
Patricia Caleca
Xx
$79
Anonymous
Go Christoph, Go!!!
$53
Anonymous
$53
Hoey
Winning!
$53
Fraser Caddy
Well done Lani 💜
$53
Matched Donation
National Major Partner, Nexon and Supporting Partner, UCB are matching donations received for the Walk for Epilepsy.
$53
Tom Moody
Great work mate!
$53
Jason Oconnor
Great work
$53
Ruth
U go girl ! Love u
$53
Johnny White
Make Johnny run🥰😂
$53
James Bayly
$53
Anonymous
I’ve never met you Lani, but you are well loved by my daughter and I admire your family greatly and you for your ever smiling face.
$53
Genevieve Walker
Much love to the Kiefer family, and go Team Lani!!!! 🙌🏻 And in memory of another epilepsy warrior, my beautiful brother James 🩷
$53
Chris And Eddie
Go Team Lani 🥰🥰🥰🥰
$53
Helen Child
$53
Carl Schaller
Go Chris
$53
Geoff Green
Go Team Lani
$53
Mark Fernandez
Good luck Team Lani 💪🏽
$53
Anonymous
Good luck on your quest.
$53
Paul Milotti
Well done mate. Great cause.
$53
Anonymous
$53
Siobhan Taylor
Love your work ❤️
$53
Jade Cullen
$53
Mary Jo Fish
Go Lani!
$53
Liz And Joe Albioli
Love you Lani, our beautiful girl.
$53
Heather Thomas
Not enough money is raised for epilepsy, Melanie takes medication twice a day Go girl
$53
John Oconnor
$53
Chris Kiefer
$53
Hannah Cullen
$53
Dianne, Pete Pogo & Family
Go Chris
$53
Michael Jones
$53
Matched Donation
National Major Partner, Nexon and Supporting Partner, UCB are matching donations received for the Walk for Epilepsy.
$53
Donna
Good luck guys!! I’ll aim to walk/run it with you.
$53
Joy A
$53
Matched Donation
National Major Partner, Nexon and Supporting Partner, UCB are matching donations received for the Walk for Epilepsy.
$53
Anne
Go team Lani!
$53
The Kellys Xx
A great cause for a fabulous niece. Go Chris!
$53
The Kellys Xx
Go Team Lani! We’re right behind you Caz and Aunty Caz!
$50
Ellen Hart
Lani you are amazing.
$50
Sharon Smith
$50
Matched Donation
National Major Partner, Nexon and Supporting Partner, UCB are matching donations received for the Walk for Epilepsy.
$42
Ben Murray
Walk on!
$32
Lisa Ameti
You go girl! Love ya
$32
The Other Kieferrrrrrs
Way to go Chris! All the best ❤
$32
Gabrielle Kelly
Well done Chris Wayne and gay
$26
Michele Hogg
$26
Sharon Walker
$26
Jo
Great work Helen
$26
Matched Donation
National Major Partner, Nexon and Supporting Partner, UCB are matching donations received for the Walk for Epilepsy.
$26
Tutu
Proud of you!
$26
Claire
$26
Cooper Stolz
$26
Hanling Su
$26
Puchi Langeder
Amazing!
$26
Maree
$26
Caroline Kiefer
$26
Dani
Love you Lani 🌈🌈🌈
$26
Narelle
Go Lani! You are a champion!!
$26
Go Lani
$26
Rach Mair
Best of luck Lani 🥇🎉🫶🏼
$26
Trudi Crosher-sammut
🥰
$26
Sienna Costanzo
smash it out 🤍
$26
Ella Hoey
$26
Marion Grunden
Hope you reach your goal 🍀
$26
Dave Pham
We’re behind you mate! Go get em!!
$26
Leandra West
$26
Lara
Love knows no boundries! Go team Lani!
$26
Shreya
You are a beautiful person inside out Helen. Wishing the best for Lani. ❤️
$26
Connie
$26
Rhonda Richardson
You go girl 👏
$26
Lisa M Vasiliadis
Woo hoo go team Lani! You got this 🤛
$25
Jonny
Go go go
$25
Amanda R
Go team Lani!
$21
Laura Onciarich
Good on you H, your a beautiful and kind human xx
$21
Natalie Monaco
$21
Sim
I know you can do it. Put a few boutique stores en route and you will have it nailed. Super proud of you H! Happy to support your cause.
$21
Sophie Fazzolari
Good luck for the walk and good on you!
$20
Liz Welham
Keep up the good fight Super Mum. Love Liz and Carl.
$20
Keira Meli
Great effort guys..thanks for the hard work fighting for Epilepsy..good luck with it..you are champions..Go Lani..🥰
$16
Karlee G
$16
Anonymous
$16
Ash & Rem Smiles
We love you Aunty H!
$15
Anonymous
$11
Suzanne Lovel
$11
Rhonda Newman
$11
Trina Beale
$10
1800 437 453
walk@walkforepilepsy.org.au
Go Chris!